Letter from the National Marrow Donor Program

Good thing I updated my info on the national bone marrow donor Registry.  I recently received a letter from the National Marrow Donor Program saying:

Dear Jennifer:

On 02/25/1995, you took the first step to help save someone’s life – you signed up to become a member of the National Marrow Donor Program (NMDP) Registry. To celebrate this important anniversary, we want to thank you for your commitment to saving a life.

For many patients with life-threatening diseases such as leukemia and lymphoma, a marrow transplant from an unrelated donor is their best or only hope for a cure. These patients are among the 70 percent who do not have a donor in their family and rely on volunteer donors like you to save their lives.

As doctors search the Registry, your tissue type is being continuously reviewed as a possible match for a patient in need. We all have the power to help. By joining the Registry, you have taken the extra step to give patients hope that a match can be found. On behalf of all the patients and their families, we thank you.

You can also help by 1) encouraging others to join the Registry, 2) making a tax-deductible contribution, or 3) volunteering.

Thank you for continuing to provide hope to patients in need of a life-saving transplant.

Ok, so since I have neither time nor money, I’ll go with #1. DO IT! Especially if you’re Asian. Because tissue type is inherited, patients from the same ethnic background are more able to find an appropriate match within that same community.

Visit http://www.marrow.org and join the registry. Or you can  set up a drive at your school or church by contacting one of these National Marrow Donor Program Recruitment Groups:

  • Asians for Miracle Marrow Matches (A3M) — recruits mainly in Southern California: http://www.AsianMarrow.org
  • South Asian Marrow Association of Recruiters, Inc. (SAMAR) — recruits in New York, Massachusetts, Vermont, Connecticut, New Jersey, Pennsylvania, Maryland and Delaware: http://www.samarinfo.org
  • Asian American Donor Program — recruits mainly in Northern California: http://www.AADP.org

Wow, 1995. That was during one of those regional AACF praise night events–in Riverside, I believe. Dang, I’m old.

One Comment

geech February 27, 2009 Reply

I wanted to thank you for posting this. I think Dee Dee/Heddy Chiang would really appreciate this post. She is the co-founder of AADP. She is a very close family friend, we spent many weekends and vacations with our two families at a younger age.

Her daughter Amanda Chiang died in 1989 of leukemia because they couldn't find a donor that matched, me being one of them. I remember Brittany her younger sister always talking about Amanda, even thought she never knew her. Her story is documented in Amanda's Legacy. I run in honor of her.

Now, if only they would take my blood. Last time they pricked my finger and said my temperature was too high by .2.

Talk to me, Goose.

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